We are proud to partner with the research institutions below to further SOGI(sexual orientation and gender identity) data collection. The studies below have been reviewed by our team and meet our guidelines. In addition, they will expand research, treatments, or policies related to LGBTQ+ health.
Research Partnerships
We are proud to join The American Cancer Society National Roundtable on Cervical Cancer (ACS NRTCC) to create tools that teach doctors about the newest and best screenings, make educational materials to provide accurate and trusted information to communities about cervical cancer, help write policies or put new systems in place so that everyone can get access to the best care available. Your input is key in establishing this Roundtable’s priorities, so make sure to fill out the surveys below
Young adult sexual minority women (SMW), including lesbians and bisexuals, are at particularly high risk, with up to 4.8 times increased odds of cigarette smoking than heterosexual women; up to 660,000 young adult SMW smoke and are at increased risks of smoking-related cancers and cardiopulmonary illnesses. Findings from this study will provide the foundation to develop an evidence-based and culturally tailored inoculation approach to increase resilience to tobacco marketing among young adult SMW and that addresses the needs of future adopters and implementers. Learn more
External Projects Recruiting Research Participants
Organization: University of Notre Dame
Purpose: The aim is to develop a screening tool that assesses for internalized forms of oppression (racism, heterosexism) among sexual minorities of color.
Participation requirements: Identify as a sexual minority of color (LGBQ+ and person of color) and who has experienced discrimination/negativity for being a sexual minority of color.
Length of study: ~10 minutes
Incentive: Chance to win one of five $20 gift cards.
Link to study: https://luc.co1.qualtrics.com/jfe/form/SV_7Pu3rZv4eL5BRaK
End date: April 1, 2024
If you have any questions about this study, please reach out to Juan R. Pantoja-Patiño at jpantoja@nd.edu
Organization: University of Texas (Austin)
Purpose: The purpose of the study is to understand participants’ experience of an online LGBTQ+ affirming reflection activity called Dignity Therapy. Dignity Therapy aims to honor human dignity in people with a serious illness. Dignity Therapy involves answering a set of prompts/questions about participants’ lives. Dignity Therapy may help people with a cancer diagnosis by giving them a place to process their thoughts and feelings.
Participation requirements:
- Be at least 18 years old
- Identify as an LGBTQ+ woman
- Have cancer and been told by a doctor that you likely have 12 months or fewer left to live
- Not be experiencing cognitive or decisional impairment or have been diagnosed with a cognitive impairment condition such as dementia, or Alzheimer’s disease
- Be legally able to make your own medical decisions
Length of study: between 1-3 hours if participants complete all 3 parts of the study.
Incentive: $200 via Tango electronic gift cards total if all 3 parts of the study are completed
Link to study: https://utexas.qualtrics.com/jfe/form/SV_b0X0gm3OiGFNVcO
End date: July 2024
If you have any questions about this study, please reach out to Lexie Wille at lexiewille@utexas.edu
Organization: University of Washington
Purpose: To understand how gender-affirming hormone therapy might affect how the body processes other medications, including those medications used for cancer treatment.
Participation requirements:
- Self-identified trans* adult at least 18 years of age.
- Not taking estrogen treatment currently.
- Transgender adults planning to take oral or injectable estradiol treatment.
- Study Visit 1 will take place at the University of Washington Medical Center Translational Research Unit for an overnight visit (approximately 24 hours)
Length of study: 3 months
Incentive: Participant compensation is available up to $1,115
Link to study: https://www.iths.org/participate/effect-of-estrogen-treatment-on-drug-metabolism-and-transport/
End date: 2025
If you have any questions about this study, please reach out to Lauren Cirrincione (hrtlab@uw.edu)
Queer women deserve safe and affirming cervical cancer screenings. Share your story and help all queer women have better screening experiences.
- Organization: MultiCare Institute for Research & Innovation
- Purpose: Identify factors that limit or prevent queer women from accessing or receiving cervical cancer screenings and how to improve screenings to meet the needs of queer women.
- Participation requirements: Identify as a cisgender queer woman
- Length of study: ~90 minute interview over Microsoft Teams
- Incentive: Interview participants will be paid $100 for their participation.
- Link to study: https://redcap.iths.org/surveys/?s=7KJJ3RKHYH4KHA9M
- End date: 2025
- If you have any questions about this study, please reach out to Deana Williams, PhD, MPH (Deana.williams@multicare.org)
RISE STUDY and SPICE STUDY with CUNY Hunter College’s Psycho-Oncology Lab
- Purpose:
- RISE is a one-time online interview study that aims to explore sexual functioning, sexual relationships, sexual self-concept, and self-esteem among sexual and gender minority survivors of cancer. The interview will be focused on relationships, self-esteem, and intimacy.
- SPICE is a one-time online survey study that aims to explore sexual self- concept, sexual health knowledge, relationships, and body image.
- If you have further questions about these studies, please email study coordinators at hunterpsychooncologylab@gmail.com for more information.
- Importance: Increasing the knowledge base of sexual self-concept among young adult cancer survivors will help inform health care providers and clinicians on how to better provide care and support. This in turn may help to address the disparate health outcomes faced by young adults following cancer treatment.
- Eligibility requirements:
- RISE: young adult (18-39) cancer survivors who identify as gender and/or sexual minorities
- SPICE: Young adult (18-39) cancer survivors (SPICE)
- Length:
- RISE: 60 minute online interview
- SPICE: 60 minute online survey
- Incentive:
- RISE: $80 Amazon gift card
- SPICE: $15 Amazon gift card
- Study Period:
- RISE: August 2023 – July 2024
- SPICE: February 2023 – July 2024
Prof. Ariel Smith Malonga, Ph.D. from the University of Illinois, Chicago desires to raise the voices of Black LGBTQ+ youth to understand how identity impacts health and relationships. This interview will take place virtually via zoom. Interested individuals can scan the QR code on the flyer or click the link below to determine if they are eligible for the study.
Research Inclusion Supports Equity (RISE) – https://www.theriseregistry.org/
Who: LGBTQIA+ adults with memory concerns and memory loss diagnosis such as Alzheimer’s disease and other related dementias as well as LGBTQIA+ caregivers for those with memory loss.
Goal: To increase LGBTQIA+ representation in aging research.
Closing Date: Fall 2024
THE WE-ACT STUDY with Memorial Sloan Kettering Cancer Center
- Purpose: This study is looking to help cancer patients keep their jobs during and after cancer treatment. Participants will review an app that contains advice for patients to use when having conversations about cancer with their employers and their doctors. Please contact the study coordinators at (646) 599-2365, (646) 592-2258 or weactstudy@mskcc.org for more information or to sign up to participate!
- Eligibility requirements:
- Have been diagnosed with cancer
- 18 years of age or older
- Currently working
- Speak English or Spanish
- Have access to a smartphone or tablet
- Length: Participants will be given about a month to use the app before an interview. The interview will take about 46 to 60 minutes.
- Incentive: Participants will receive a $75 CVS gift card after completion of the interview.
- Study Period: 12/1/2020 – 9/2/2024
Are you interested in recruiting participants for an LGBTQ+ health or health-related study?
Before sharing research opportunities with our community, we review them to ensure that they meet our best practices. Complete the form below and we will review your study and reach out to you about promoting your research.