Out: The National Cancer Survey

We believe the only thing a cancer survivor should have to worry about is getting better. No one should feel scared about being treated differently because of who’s holding their hand as they wait for the doctor to arrive.

BIPOC(Black, Indingeous and People of Color) Report

In 2020, The National LGBT Cancer Network launched OUT: The National Cancer Survey. One of the largest-ever studies of LGBTQI+ people with cancer. This month, we shared our BIPOC report, which focuses on the unique cancer journeys of our BIPOC survey participants.

Watch the Launch Event

Gender Expansive Report Launch Event

Special Gender Expansive Findings

Summary of All Findings

Watch The
Launch Event

About The Survey

Our Partners

FAQ’s

Read the Press Release

Launch Event

LGBTQI+ Cancer Survivors, Your Feedback Will Directly Improve the lives of LGBTQ+ Cancer Patients!

OUT: The National Cancer Survey, is a survey for LGBTQ cancer survivors. You can help us improve cancer care by sharing your experiences with cancer. We want care to be safer and more welcoming for our communities.

Your Experience Can Change LGBTQ+ cancer care for the better.

We aren’t just looking for stories about awful experiences (although we know they exist). Good, fair, and tolerable encounters with cancer care all give us a greater understanding of what care looks, and what we should be aiming for in the future.

The National LGBT Cancer Network’s mission is to advocate for the needs of LGBTQI cancer survivors and to educate researchers, law makers, and healthcare providers on how to create welcoming and safe environments for LGBTQI patients. The results of this survey will help us show what needs to be changed and will provide useful advice to both patients and healthcare providers!

Help us out! Spread the word and share this survey on social media. The more voices we reach, the more comprehensive and impactful the results will be!

Lead Partner

The Center for Black Equity is the lead partner with the National LGBT Cancer Network for this study. It is our mutual goal that we will recruit enough respondents to publish a special report on the experiences of Black and Brown LGBTQI+ people with cancer.

Frequently Asked Questions

Who is eligible for this study?
In order to be eligible you must:

-Have been previously diagnosed with cancer,
-Identify as LGBTQI+
-Be 18 years or older
-Currently live in the US

How do I take the survey?

The survey can be taken on a phone, tablet or computer. To take the survey, scan the QR code or visit https://bit.ly/3gHT2en.

What if I have questions or want to know more about the survey?

Send us an email – outsurvey@cancer-network.org or call The National LGBT Cancer Network at 212.675.2633.

What does LGBTQI+ mean?

LGBTQI+ includes people who are lesbian, gay, bisexual, transgender, queer, born with a variation in sex characteristics and those who identify with other terms used in our communities. If you are an LGBTQI+ person who has/had cancer, we want to hear from you.

Why do we need an LGBTQI+ cancer survivor study? Cancer is cancer, right?

Unfortunately cancer does not affect us all equally. Stress, discrimination, access to health care, criminalization, social isolation, bereavement, homophobia, transphobia and fear of being mistreated by doctors, all contribute to later diagnosis and worse outcomes. In an ideal world cancer would affect everyone equally, but we are still striving for that ideal world.

I am a caregiver to someone with cancer, am I eligible to take this study?

We hope to conduct an LGBTQI caregiver study one day soon, but unfortunately caregivers are not eligible for this particular survey. You can still help support the survey by sharing it on social media. Additionally here are some resources for LGBTQI caregivers:

https://cancer-network.org/caregiver-resources/
SAGE
AARP’s Report

What will the National LGBT Cancer Network do with the results of this study?

We want to improve the lives of LGBTQI+ cancer patients. Part of our goal is to provide useful advice to both patients and healthcare providers. We will use the information from the survey to provide important information for researchers, policymakers, trainers, and healthcare providers. This information will help with future trainings for healthcare professionals nationally, and shape policies and programs for LGBTQI+ cancer survivors.

This survey will be used to make cancer care a safer and more welcoming place for LGBTQI cancer survivors and their families.

How long will the survey take?

It takes about 30 minutes to take the survey.

What will I be asked about?

The survey will ask you about your health, social support, and experiences getting health care.

What will you do with my information?

All of your answers will be anonymous, meaning that your responses cannot be connected back to you personally. We cannot share any of your personal information such as your name or location.

What if I don’t feel comfortable answering some of your questions?

All of the questions are voluntary. You may skip any question you are not comfortable answering.

This national survey is made possible with the support of a grant from Bristol Myers Squibb (BMS).

New England IRB Protocol:1291764